Global resource directory
Start somewhere trustworthy.
Public-health guidance, clinical references, support charities, research tools and practical resources. More countries can be added as the project grows.
United Kingdom
NHS: Ehlers-Danlos syndromes
Public health guidance ↗
United KingdomEhlers-Danlos Support UK
Patient charity & support ↗
United Kingdom / GlobalEDS UK GP Toolkit
Clinician education ↗
United Kingdom / GlobalThe School Toolkit
Schools & families ↗
GlobalThe Ehlers-Danlos Society
Research, education & community ↗
GlobalFind an EDS/HSD support group
Local support directory ↗
GlobalFind a doctor or therapist
Healthcare directory ↗
GlobalDICE Global Registry
Research registry ↗
United States / GlobalGeneReviews: Hypermobile EDS
Clinical reference ↗
United States / GlobalMedlinePlus Genetics
Patient genetics information ↗
Europe / GlobalOrphanet
Rare disease reference ↗
AustraliaHealthdirect Australia
Public health guidance ↗