Independent global EDS information & community project · working titleMedical information policy →
Community

Talk about the messy bits too.

Questions and discussion are welcome, but the community will be moderated. Personal experience is not a licence to diagnose strangers or prescribe treatment.

People in a community discussion
Community rules

Kind. Useful. No miracle cures.

Share what happened to you. Ask what helped someone navigate work, family or appointments. But don't diagnose another person, sell unverified treatments, or tell someone to start or stop medication.